description, methodology, collective history, general history

INTRODUCTION

The 0+Ball was organized with many partners and it had a variety of issues it wanted to address, as will become clear later. The programme for the 0+Ball is included in appendix 4. The source material on which this case study is based consists of The Proceedings, published by the Center for Innovation and Cooperative Technology (CICT) at the University of Amsterdam, and 8 Personal Folders that were used by the organizers during the production of the 0+Ball. They are labelled: before the 1st of May, personal letters, correspondence IN/OUT, Caroline, 0+Network, Workshops and Debates, Fold and Follow UP and Documentation. The Personal Folders are rather chaotically archived and contain all kinds of material, which is no surprise because a number of people worked with them. Apart from all this written and printed documentation there is my own techno-biographical layer of perception because I was the producer of the event. An historical account that attempts to understand the significance of an event like the 0+Ball would also have to analyse the archives of all the partners involved and interview many people. Since I am exploring the design of presence in this case study I will only work with the above mentioned material. As a social scientist I will argue, in choosing this case study, that it was a moment of significance in the history of presence design. As Heleen Riper, one of the key-informants of this case study formulated it, the 0+Ball offered a multimedia mix 'avant la lettre'. Key-informants, who have reviewed this case study report, are Heleen Riper, David Garcia and Annette Verster. Both Heleen Riper, who was connected to the Centre for Collaborative Technology at the University of Amsterdam in 1990, and David Garcia, who was an independent visual artist in 1990, were co-producers of the 0+Ball. Annette Verster, who was connected to the GG&GD, the Health Service Amsterdam, collaborated with us as participating organization.note 132

Going through my Personal Folders so many years later, I now find notes, letters and traces of people who have since died; Andre Bongers and Eric Hamwijk, Matthew Lewis, Gregory Given, Martien Krouwel, Wick Ederveen, Peter Zuydervliet and Bart Eijrond, among others, were crucial in creating the 0+Ball and its off-shoots. Heleen Riper mentions Jeanine van Woerkom and Anita Bolderbei in this context, who were among the first women diagnosed with HIV in the Netherlands and who courageously demanded attention for the situation of women and HIV/AIDS. I have also found traces of people of whom I cannot say if they are alive or dead, but of the people who were diagnosed at the time with HIV or AIDS, I have to speculate about what might have happened to them. If they have died the cause may have been AIDS, but not necessarily so. I have met many people in my life of whose whereabouts I am now unsure, but the curse of being diagnosed with the virus changes the perception of one's own life as well as the perception of one's life by others. In 1990 there was no combination therapy, and HIV was not a chronic condition yet. Such a change of perception towards one another can easily be felt as humiliating as Martien Krouwel suggests: "Every human being is mortal, but why should I have to exchange my drive for life for waiting for death when I am seropositive? I work and live from a deep feeling that has nothing to do with the fact that I am seropositive" (Krouwel 1990, 116).note 133

Below, I will first sketch the situation concerning AIDS and HIV in 1990, which was a very different situation than today. After that I will introduce ACT UP and the different partners that were collaborating in the 0+Ball. Then I will sketch at length how the 0+Ball came about, how we decided to do it, and after that I'll elaborate upon the production phase. The 0+Ball clearly built on the experience of the GHP. Notions like 'social interface', conveying 'trustworthiness', collaboration between different skills were all taken a step further. Therefore the production design was more elaborate from the perspective of presence and the design of trust in social interaction and collaboration. For this reason I focus mostly on the collaboration between people in describing the event.

My choice of describing the collaboration between the producers and participants in such detail stems from the writing of stories in the text laboratory, and I also made that choice because in 2006 many organizations are still struggling to discover how to orchestrate collaboration using different media. I will not discuss what happened literally during the days of the 0+Ball. The programme in appendix 4 gives a clear impression. I will focus explicitly on the way we designed the different presences in natural presence, mediated and witnessed presence in Paradiso, via the radio and the network. After these accounts I will reflect on certain issues that surfaced during the 0+Ball: The context of the concept of the 0+Network, Vital Information, Crucial network and Orchestrating Chaos.

  • methodology, theory, text laboratory: 

    Text Laboratory

    Caroline Nevejan - The term ‘text laboratory’ is attractive for describing the work that was carried out in this research project. This methodology is ...
  • description, question: 

    Hogeschool van Amsterdam and the Digital University of the Netherlands

    Caroline Nevejan - In 1999 I started working for the University of Professional Education in Amsterdam and through this institution I was involved in the ...
  • description, methodology, subjective, collective history: 

    Orchestrating contributions and audiences

    Caroline Nevejan - Throughout the months of May and June many commitments were met: raising the funds from the ministry of Education, Culture and Sciences ...
  • description, personal history, collective history, techno-biography: 

    Several kinds of documentation

    Caroline Nevejan - The source material for this case study consists of several kinds of publications. There are the proceedings, published by Paradiso and ...
  • concept, argument, personal history: 

    To link different networks and different languages

    Caroline Nevejan - The fact that as organizers of the GHP, we were actually connecting in person with most of the guests and contacts, made the conference ...
  • description, collective history, general history: 

    Many musicans, many scholars

    Caroline Nevejan - Paradiso is a former church in the centre of Amsterdam, which was squatted in 1968 note 82 . Since the early days music and debate from ...
  • description, general history: 

    HIV/AIDS AND POLICY

    Caroline Nevejan - The recognition and will to deal with the AIDS crisis has been at the heart of moral thinking in societies all over the world because ...
  • description, collective history, techno-biography: 

    Sketch of the network

    Caroline Nevejan - The 0+Network itself and all the communication and information it facilitated does not exist anymore. Only some printed emails and ...
  • description, methodology, theory: 

    Civil and Criminal law

    Caroline Nevejan - All societies, even all groups, invent rules by which they channel the behaviour of their individual components. Behaviour is noticed by ...
  • proposal, citation, argument, conclusion: 

    Three presences

    Caroline Nevejan - IJsselsteijn also makes the following observation about the future: "With more advanced media, it will become increasingly hard to ...